Picture this: The year is 2016; the boy band One Direction officially broke up months ago; and former member and standout singer Harry Styles has made plans to go solo, cutting his shoulder-grazing heartthrob hair in the process. Why? Well, he just ditched the group that skyrocketed him to fame, and he's going to be in a period action-drama about WWII called Dunkirk. In other words, he's moving on. Fans are, naturally, heartbroken over his sudden transformation.
Fast-forward three years, Styles is about to drop his second album (which, he says, is very sad) and just made yet another dramatic haircut decision that is sending fans into a frenzy.
The drama started on Saturday morning when a fan tweeted a selfie of her father and Styles together in Italy. “Soooo my dad just met harry in Italy…., cannot fucking believe my eyes,” she wrote. Soon enough, the photo was retweeted all over the Twitterverse, with fans noticing that Styles looked… different.
As seen in the photo, Styles' not only cut his hair shorter, but he is now brushing it forward into a look that some are comparing to Timothée Chalamet's bowl cut in The King. This is particularly unusual because Styles' hair is always slicked back. Now, he looks like a healthy mix of Stranger Things' Jonathan Byers and former 1D bandmate Louis Tomlinson.
We may not know why Styles got the haircut, when it happened, or if it's for a role, but we do know exactly how some fans feel about it: not good.
me forcing myself to like Harry’s new hair style bc I want to support him in any way possible pic.twitter.com/3JEcNCZNSp
people unstanning harry because of his style and hair 1. what 2. he looks perfect 3. yall only care about looks 4. this beautiful legend stays unbothered
Despite how you feel about the new look, a new era of Styles is officially upon us — and as far as we can tell, Styles is unbothered by the reactions. As one fan tweeted, “He really is THAT bitch.”
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Molly Burke has over 1.9 million subscribers on her YouTube channel. Her videos rack up hundreds of thousands of views in days; her most popular one, sky-diving with fellow YouTubers, the Dolan twins, has 4.7 million and climbing. Not that she’s counting. In fact, the influencer and accessibility advocate — she’s been blind since she was 14, the result of a genetic condition called retinitis pigmentosa — makes it a habit to ignore anything that has to do with likes and comments and analytics. “Most people live and die by their Social Blade. But it stresses me out,” she tells Refinery29. “I want the reason why I make content to be the reason why I started, which is to help people and share my story and what I’m interested in, in a fun and creative way.”
Burke's story is a moving one. Growing up in Toronto, she experienced intense bullying and depression. As she was losing her sight, she started watching YouTube videos — “girls that were just around my age talking about makeup and fashion, all of the things that I loved and cared about, but didn't know how to experience or enjoy anymore… these girls taught me and helped me figure out how to love myself again,” she told Paper Magazine. Wanting to pass along that feeling of empowerment to others, she launched her own channel in 2014.
Today, Burke, now 25, lives in L.A. and posts videos on everything from what it’s like to navigate the mall with her guide dog, Gallop, to getting matching tattoos with her mom to her activism. She's also the author of the new Audible.ca book, It’s Not What It Looks Like. Here, she tells us how she is spreading disability awareness via YouTube and building a business while she’s at it.
How would you describe your YouTube community?
I’m a member of the disability community, specifically the blind community but at the end of the day, the disability community is so small, we’re all fighting for the same thing — equality and accessibility in the world.
Why did you wait to start your channel until you were out of your teens?
Being out of school eliminated one fear of mine, which was being bullied by students at school. By the time I was 20, I had already toured as a public speaker for two years. I was in a really healthy place mentally. I had worked out a lot of my own opinions on my identity and community, compared to when I was 16 or 18, when I was still recovering from my vision loss.
Everyone wants to be an influencer or a YouTuber these days, but few people know the amount of work that goes into it. Can you pull back the curtain for us?
I make a full-time living on social media and with my career in entertainment, and I make enough to pay staff. I’m doing well for myself, especially given 80% of blind people are unemployed. But the reality is, a lot of the time you see #ad and you assume people are being paid but that’s not always the case. You have to disclose when something is free. For example, I got a free mattress, which I’m grateful for, but free mattresses don’t pay bills. So people think you’re getting paid more often than you are if you do a lot of exchanges for free things. Another thing is how much of our money gets eaten up by costs of the business. My manager takes 20% of everything I do, which is fair because he works really hard for me, but that’s a lot of money! I have an assistant who works full-time for me, three editors who edit my videos, my mom who shoots all my photography. There are a lot of moving parts. Even videos where I’m reviewing clothing, I’m spending $500 to get the clothing to film that video. There’s a lot that people don’t see when running a full-fledged business.
How long did it take you to find success?
There’s the odd person who blows up overnight but that’s not the norm. For me, it took years to get 5,000 subscribers because at the time, disability wasn’t represented on YouTube in a big way. People weren’t searching it because they didn’t know it existed and they weren’t watching it so it wasn’t being recommended, so it was a vicious circle of really fighting to even get people to know content like mine was out there.
Just how much are you on your phone and social media on a typical workday?
This is where it’s interesting, I’m not on my phone that much [Laughs]. I delegate everything I can to my assistants because I want to be able to have sanity and balance. For example, I write captions for my Instagram but they post it. If I want to do a story, I film it, they decorate it, I tell them what hashtags to put, they post it. They reply to my DMs for me. So I would say I’m on my phone less than most people. I think the fact it is more difficult for me to use a phone is also the reason why I delegate tasks to my team. My friends know if you actually want to talk to me, they call me. I don’t reply to texts. I’m not that Millennial who’s obsessed with my phone even though my career revolves around the Internet.
Any advice for future YouTubers?
Commitment is key. Don’t start until you can really dedicate yourself to it. At the end of the day, it’s an algorithm we’re trying to play to and algorithms like consistency. So if there’s any advice that’s more helpful than “be yourself!” it’s to be consistent with what you’re posting and when you’re posting.
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Letzten Juni brachte Netflix eine neue Serie namens Diebische Elstern(Originaltitel: Trinkets) heraus, die von einer Gruppe von Teenagern mit einem ungewöhnlichen Hobby handelt: Ladendiebstahl. Das ist zwar nicht das erste Mal, dass das Thema popkulturell aufgearbeitet wird, aber im Gegensatz zu The Bling Ring (2013) kratzt Diebische Elstern nicht nur an der Oberfläche. Stattdessen konzentriert sich die Serie auf die dunklen psychologischen Beweggründe hinter der kriminellen Handlung.
Für die Freundinnen Elodie Davis (Brianna Hildebrand), Moe Truax (Kiana Madeira) und Tabitha Foster (Quintessa Swindell) stellt Diebstahl einen Bewältigungsmechanismus dar. Sie mussten viel durchmachen – vom Verlust eines Elternteils bis hin zum missbrauchendem Partner. Eines Tages lernen sie sich in einer Selbsthilfegruppe für anonyme Kleptoman*innen kennen.
Kristen “Kiwi” Smith, die Autorin des Romans, auf dem die Serie basiert, erzählte der Teen Vogue, dass die Idee Ladendiebstahl zu begehen wahrscheinlich vor allem Menschen anspricht, die ähnliche Probleme in ihrem Leben haben wie die Protagonistinnen. „Viele junge Frauen machen es, weil sie nicht genug Kontrolle und Macht über ihr eigenes Leben haben. Das versuchen sie häufig (unterbewusst) durch das Klauen zu kompensieren. Sie versuchen die Löcher in ihrem Inneren mit materiellen Dingen zu füllen“, so Smith. „Mir war es besonders wichtig, herauszufinden was Menschen anfällig für diese Sucht macht. Ich wollte die Beweggründe und die Sucht an sich so ehrlich und wahrheitsgetreu wie möglich darstellen.“
Laut Terry Shulman, einem ehemaligen Kleptomanen, Gründer von Kleptomaniacs and Shoplifters Anonymous und Autor von Something for Nothing: Shoplifting Addiction and Recovery kann es unterschiedliche Ursachen für die Sucht geben. „Manche stehlen zum ersten Mal, nachdem sie eine geliebte Person verloren haben, ein Trauma erlebt haben oder eine große Veränderung in ihrem Leben durchstehen musste“, so Shulman. Es gibt natürlich auch Menschen, die nach derartigen Erlebnissen eine Drogen- oder Spielsucht entwickeln, aber Diebstahl ist wegen des Nervenkitzels für viele besonders reizvoll.
Interessant ist, dass die meisten gar nicht darauf aus sind, ganz bestimmte Dinge zu stehlen, die sie unbedingt brauchen oder haben wollen. Vielmehr geht es darum, die Kontrolle über etwas zu haben. Manche klauen zum Beispiel Sachen, die sie niemals benutzen werden wie Kleidung, die ihnen gar nicht passt oder hunderte von Bleistiften, weil es ihnen hilft, ihr Ängste im Griff zu behalten. Shulman erinnert sich, dass er beim Stehlen ein Gefühl von Kontrolle und Befriedigung empfand. „Ich versuchte, mein Leben besser zu machen, in dem ich mir etwas zurückholte, das das Leben von mir genommen hatte. Damals war mir das nicht so bewusst, aber was ich tat hatte einen großen Symbolcharakter. Ich wiederholte es mehrfach und irgendwann wurde es einfach zur Gewohnheit.“ Mit der Zeit suchen die Betroffenen immer häufiger nach Gelegenheiten, etwas zu stehlen und dann kann es auch zur Sucht werden, so Shulman.
Strenggenommen ist Kleptomanie ein Symptom einer Impulskontrollstörung und keine Sucht. Charakteristisch für das „zwanghafte“ oder „neurotische Stehlen“ sind „wiederkehrende Diebstähle ohne erkennbaren Nutzen oder Motiv“. Der Begriff selbst wird mittlerweile allerdings von einigen Menschen abgelehnt, weil er veraltet und irreführend ist.
Wie in der Serie angedeutet, suchen viele Betroffene Unterstützung bei Selbsthilfegruppen oder machen eine Therapie, damit sie lernen, dem Impuls zu widerstehen. Shulman hofft, dass Diebische Elstern betroffene Menschen dazu animiert, sich Hilfe zu suchen. Auf der einen Seite ist er sich dessen bewusst, dass manche Zuschauer*innen das Ganze als Verherrlichung eines psychischen Problems sehen könnten. Gleichzeitig glaubt und hofft er jedoch, dass die Serie ein Bewusstsein für die Störung weckt und ein Gespräch darüber in Gang bringt.
Wenn du oder jemand, den*die du kennst, an einer Impulskontrollstörung leidet, kannst du dich beispielsweise an die Hotline der TelefonSeelsorge unter 0800 111 0 111 oder 0800 111 0 222 wenden oder dich bei der Caritas informieren.
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Even if you've never been to Scotland, you can probably still picture the color palette: rolling green hillsides, the weathered slate of Edinburgh Castle, a glacial blue sky and mirroring Loch Ness lake. Of course, it's also the birthplace of some of fall's most classic prints: Plaid, tweed, and tartan.
Any way you look at it, Scotland is almost synonymous with autumn tones, and fittingly, it's also the inspiration behind OPI's newest nail-polish collection. From the perfect earth-toned green to a rich red inspired by a traditional Gaelic kilt, scroll through to see and shop all 12 shades. Think of it as a roundtrip flight to Glasgow — well, for your mani-pedi.
At Refinery29, we’re here to help you navigate this overwhelming world of stuff. All of our market picks are independently selected and curated by the editorial team. If you buy something we link to on our site, Refinery29 may earn commission.
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September is, without a doubt, one of the trickiest fashion months of the year (Get it? Because it's Fashion Month). Whether you're spending it running from show to show, looking for the perfect back to school outfit or just trying to survive the seasonal transition period, there's nothing easy about dressing for the first month of Autumn. With that being said, it's about time we suck it up and get thinking about what the hell we're going to wear this month.
It's a bit too early for our usual fall go-tos (read: chunky knits, ripped jeans, sweater dresses and more), but there are a few transitional fashion items that we can move into the rotation. Cowboy boots (or cowboy mules) can slide into the place where your strappy sandals used to be. Hats, tights and scarves can be slowly reintroduced into your wardrobe — even if they're still of the summer variety. And we can finally start swapping out our everyday tank tops for t-shirts and lightweight sweaters. Trust us, it won't be easy to make the leap from summer to fall, but with a little help from the masters, it can be done. We promise.
So to ease the awkward pass-off from August to September, we rounded up some outfit inspo ahead. If you follow the leads of these street style stars, maybe, just maybe, September won't be the hot mess we were expecting it to be.
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Friends, denial ain’t just a river in Egypt — it’s the only way we have of coping with the notion that we’ve bid summer adieu. While the season technically doesn’t end until September 23, the passage of Labor Day marks the a symbolic closure of the sunny, freewheelin’ season. And we know that when August leaves us, it takes with it a whole lot of good end-of-season sales. *sad face emoji* We’re pretending it’s not happening.
It would appear that we have some friends in our camp — one of our readers' favorite shopping destinations is determined to extend the season by one more week. There’s a 40% off sale at Nordstrom that’s running through September 8, giving us plenty of time to ease into fall — while shopping for the greatest hits in beauty and fashion as though we’re still in the throes of August. Click through to check out some of the best fall-ready items we could find in the markdown section — they’ll definitely make the seasonal transition that much easier.
At Refinery29, we’re here to help you navigate this overwhelming world of stuff. All of our market picks are independently selected and curated by the editorial team. All product details reflect the price and availability at the time of publication. If you buy something we link to on our site, Refinery29 may earn commission.
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Clear your schedules for September 10. That’s the day Queen Margaret Atwood is gracing her fans with The Testaments, the long-hoped-for sequel to the 1985 novel The Handmaid’s Tale. Years after encountering the devastating dystopia in high school English class, we’ll learn what happens to Offred on her journey out of Gilead. Atwood’s sequel is independent from the Hulu show — but good luck trying not to picture Elisabeth Moss as Offred.
The Testaments is only one of many tantalizing books coming out this month. The hottest tome of September is The Secrets We Kept, Lara Prescott’s debut involving spies, secretaries, and Doctor Zhivago. Jodi Kantor and Megan Twohey tell us how they wrote the Weinstein story in their new book, She Said. And frankly, I’m still not over the ending of Mary H.K. Choi’s Permanent Record.
Als Fan von Lizzo und ihrer Hitsingle „Truth Hurts“ stellt sich dir beim Mitsingen vor allem eine Frage: Wie viel Bitch steckt in mir? Und wenn du jetzt dachtest, dass du das wohl nie erfahren wirst, hab ich eine gute Nachricht für dich, denn jetzt gibt es einen DNA-Test, der dir diese Frage beantworten kann. Kein Scherz! Die Musikerin hat nämlich in Kooperation mit Spotify einen Test entwickelt, der prozentual genau dein Bitch-Level auswertet.
Aber keine Sorge, dafür musst du jetzt nicht in ein Reagenzglas spucken und die Daten im Labor auswerten lassen, sondern nur ein paar Fragen beantworten und fertig!
Bevor es losgeht, bittet Spotify dich um die Erlaubnis, auf deine Daten zuzugreifen. Für Nutzer*innen von Apple Music ist der Test also leider nicht zugänglich. Für alle anderen geht es aber gleich weiter. Im nächsten Schritt musst du nur noch ein Selfie machen oder ein altes hochladen. Ist das geschafft, heißt es dann endlich: Quiz-Time!
Die zehn Fragen beschäftigen sich mit dir als Person und deinen Ansichten zu verschiedenen Themen. So gibt es beispielsweise Grübelfragen, wie: „Was hältst du von festen Partnerschaften?“, oder „Wie hast du die letzte Beziehung beendet?“
Es gibt aber natürlich auch ein paar Fragen, die leichter zu verdauen sind, wie zum Beispiel: „Welches Haustier hast du?“
Wenn du den Test mit einem Ergebnis von 100 Prozent bestehen willst, brauchst du eine gute Strategie. Hilfreich ist es, wenn du die Songtexte von Lizzo im Hinterkopf behältst. Außerdem schadet es nicht, an die Fragen wie eine Bitch heranzugehen. Sei aber gewarnt, denn ganz im Sinne des Songtitels kann die Wahrheit hier wehtun. Lizzo selbst bekam nur 93 Prozent und es ist immerhin ihr Lied.
„Awkward“, kommentierte Lizzo ihren Twitter-Post, in dem sie ihr Ergebnis zeigte.
Auch wenn „Truth Hurts“ schon vor zwei Jahren herauskam, wurde der Song erst durch den Netflix-Film Someone Great ein viraler Hit. Heute ist er der erste Song der Sängerin in den Top-10 der Billboard Hot 100.
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One in four adults in America are living with a disability, but you wouldn't know it with the lack of representation in media, Hollywood, and the workforce. We're shedding light on the real stories — not the caricatures — of this dynamic and vibrant community of individuals. Read more stories from our Voices of Disability series.
In my freshman year of college, I made a plan to get coffee with a former English teacher, whom I’ll call Mark, during my fall break. This first-name basis that students had with their teachers was a linchpin of the progressive private high school I attended. Whether it was because of this institutionalized egalitarianism or his personable, warm energy, Mark always seemed like less of an authority figure to me and more like an uncle.
Most mornings, Mark and I would run into each other on the 1 train as we both made the exodus from the Upper West Side to Gramercy. In these 20 minutes first thing in the morning, we talked about his family and mine, the books we liked, and the best bagel in Manhattan. I remember feeling a rush of excitement when Mark would share mundane details about his life with me, it made me feel like we were truly friends. I hoped that he had thought of me as a precocious 16 year old, but in my heart of hearts I knew he probably thought I was just a lonely nerd who liked to read.
Yet now, with what felt like an immeasurable amount of time and distance from high school (i.e. four months), I wanted to impress him and prove that I was thriving. I’d regale him with my own critical perspective on Hegel and my love for As I Lay Dying, and I’d show him how I was a well-liked, certified “cool kid” with friends. I had even gotten into doing stand-up comedy.
I met Mark outside of the school lobby, feeling relieved that I wouldn’t have to step through those doors again. Mark greeted me and gave me a slightly awkward side hug. We walked to Everyman Espresso, a proletariat title for a coffee shop that charges $4 for a latte. While he was in the bathroom I ordered myself an iced coffee. I made sure to pay for myself—I didn’t want there to be any awkwardness.
“So what have you been up to? What’s new?” Mark asked when he returned.
“Well, actually, I’ve started doing stand-up comedy,” I said, expecting to elicit some awe and admiration.
“Oh wow, are you talking about your hand?”
I felt my body tense. This topic had always seemed off limits. Indeed, one of the most distinctive features about myself is something I avoided discussing at all costs in my comedy routine: I was born without a left hand, a condition that makes it hard to type, climb, or chop a clove of garlic. As a child, this was merely a source of frustration: It prevented me from swinging from the monkey bars or twisting my hair into a high ponytail. But in my teenage years, my hand became a source of deep insecurity. I hid behind cavernous sweatshirts, my armor against the world. When college started, I began wearing a prosthesis, which drastically changed my sense of self. I felt wildly more confident with it, as though I was able to be the person I never felt I could be. I wore sleeveless shirts, I took up space, and most significantly, I tried to forget who I was before.
“Well, actually…” I pulled up my sleeve gradually to show Mark the prosthesis I was wearing.
“Oh wow… that’s – I mean that’s great,” he said, his eyes widening.
“Yeah uh, I- I know, it really is. I feel a lot better about myself now, I guess.”
“Well I’m happy for you. I remember how you used to hide it – your hand, I mean.”
In my teenage years, my hand became a source of deep insecurity. I hid behind cavernous sweatshirts, my armor against the world.
There was only a slight lapse in the conversation but it felt like an eternity. I remember how you used to hide it kept ringing in my head. Here was the one person who I felt respected me, but maybe he saw me in the way I feared everyone else did: A weird kid who was profoundly self-conscious. I forgot about Hegel and Faulkner, about all of my new friends and all of the new things I had pushed myself to do. I felt a lump form in my throat.
“Yeah I guess I did. But like I said, I feel a lot better about myself now.”
“Even if you’re wearing a prosthesis, I still think you should be talking about it. That’s good comedy—putting words to all that. And you’re not one to shy away from a challenge.”
I smiled lightly. Mark was speaking to me with such candor, yet this honesty was not the kind I craved. I felt exposed and belittled. I needed to cut this conversation short while I still had some dignity left. “So tell me about how the year is going. Any changes to the curriculum?” I mustered. And just like that we got on a different track. We didn’t return to the topic of my stand-up comedy for the rest of our time together, and I couldn’t shake how I felt for days.
It seemed like I had no way to win. When I did expose my underdeveloped left hand, the stares of others felt like a searing sting. Yet even with my prosthesis, the comfort I felt in my own skin seemed fragile, as if the sense of self I’d constructed could fall and shatter at any moment. In my freshman year, my new friends soon found out that my left hand, seemingly so life-like, was in fact a pale, silicone imitation. The first time this happened I felt a pit grow heavy in my stomach: My secret had been found out. It was a Saturday night in September. The air was sticky with that cloying, end-of-summer heat. There were a gaggle of us, all dancing with the lights off in someone’s cramped dorm room. My new friend Katie, blue-eyed and American Girl doll-like, grabbed my hand to twirl me around and quickly realized something was off. I met her shocked expression and sputtered out an explanation, growing as red as the boxed wine we’d been drinking. The charade was up. I worried that Katie saw me as I saw myself: ugly.
As college went on, I grew more comfortable with people knowing about my disability. Yet even so, the idea that my deepest insecurity could become common knowledge terrifies me.
Last year, “The Hysterics,” the stand-up comedy group I performed with throughout my time in college, began planning a benefit show to raise money for the last private abortion clinic in Connecticut. We wanted to draw a big audience and so we booked Crowell Concert hall, a venue that can accommodate over 300 people. I had to cobble together a set but I was tired of all my jokes about how my preferred party activity is monitoring the pile of coats on a bed, or the time some boy accidentally booty called my father instead of me. I liked to think these tales are unique to my experiences, but in truth, they could be told by anyone.
When I first began performing, standup felt like a mode of escapism. When the lights went up I stepped into my onstage persona. With a mic in hand I was in control of the narrative. Yet over time, this habit of deliberately divulging only certain aspects of my life did not feel liberating. Instead, it had started to feel like a self-imposed restraint of what I could and could not say. I was frustrated with my instinct to retreat in fear of what people might think.
Over time, this habit of deliberately divulging only certain aspects of my life did not feel liberating.
A couple of days before the show, my friend Cam and I were talking out our potential sets. Cam can do knockout impressions, construct hilariously deft stories, and have the audience wrapped around her finger with a single line. I laid on Cam’s bed with my feet against the wall as we tossed around various ideas. As we talked I picked at the skin around my nails, a habit that had only gotten worse with age. Across the room Cam swiveled in her desk chair and threw a pink stress ball between her hands. Each time she palmed the ball in her left she gave it a firm squeeze.
“Ok ok, what do you think of this: All I’m saying is, “The Pixar film, Ratatouille, set my expectations for the vegetable-based dish, ratatouille, unreasonably high” Cam said, looking at me expectantly.
“Ha! I like that,” I responded, continuing to pull at my skin. “Cool. I think I’m gonna do the bit about how I lick peanut butter off the spoon like a dog and also the Sex and the City one. What are you gonna do?” Cam asked.
My finger started to bleed.
“Uh, one of the things I’ve been thinking about telling is the story of how before I left for college, my mom’s way of coping was taking pictures of me sleeping.”
“Oh, yeah, that’s so weird,” Cam said, giving a half-hearted laugh. “You can definitely do that.”
“I mean, I was also thinking about how I could tell this one story that happened last spring.”
And so I began to tell Cam a wild story about someone who sought to empathize with me over my hand but had completely and hilariously missed the mark. Even with Cam, a person who had been my friend for most of college, this story felt deeply vulnerable. My hand was the focus of the narrative. Without even looking, I could feel her staring at my prosthesis as we talked. But at the end, Cam burst into laughter. “You have to do that bit in your set!” she exclaimed.
In truth, I had been holding onto stories like these for ages. I knew they went deeper than my other one-liners and bizarre anecdotes. I was still terrified, but I wanted to tell the things that were honest, that rang true. For so long I had been drawn to stories that could be told by anyone. Now, I felt the stories that I’d buried start to stir.
As the event drew closer, my anxiety worsened. My head was full of everything that could go wrong: What if I forgot a critical joke, or what if there was a chorus of pity laughs? Even worse , what if the entirety of the act was met with deafening silence? I asked myself why I was so bent on doing this. Was a part of me trying to please Mark? Had this idea stuck with me merely because it had first been planted in my head by an authority figure who seemed to “get” me? Or was this something I truly wanted to do?
On the evening of the show, all of “The Hysterics” gathered in the green room of the concert hall. My friend Emma had brought a case of Mike’s Hard Lemonade for everyone, and we waited for the seats to fill. Time seemed to move unbelievably slowly. In the 45 minutes before the set I felt the tick of the clock reverberate through each notch of my spine. Suddenly the MC was introducing me and I walked on to the stage.
The lights were glaring and I felt myself begin to sweat under their heat. The audience was a swath of classmates I knew and did not know. I could make direct eye contact with the girl I shared an ex with, a fairly new friend, and a secret crush. I gulped and began.
So I was born without a left hand and I wear a prosthesis. That was it. The hardest line. And it was over just like that. I had peeled off the Band-Aid to reveal the cut I had closed over.
I let out the next line: It’s not something I’m ashamed of, but at the same time, it’s not something that I love to broadcast. Like, I’m not walking into a room of new people being like, “Fake hand! Who wants to touch, eh?!”
I was doing it, and people were laughing. I leaned in. I felt reassured in the fact that there was nothing I could do now. The hardest part was over, and now I could let the words fall from my mouth.
I had built up this moment in my mind for ages and now it was over.
Almost always, when people find out I have a fake hand, they brush past it because either they feel awkward or they don’t want to make me feel uncomfortable. But this isn’t always the case. One time I was drunkenly peeing in the bathroom with someone I had just met and she starts looking at my arm and is like, “Dude what’s going on with your hand right now?” And I’m like, “Oh it’s fake, it’s a prosthetic limb,” and she gets so apologetic and starts going on like, “I’m so sorry, I really do feel like I should say something vulnerable about myself to make you feel better. And I’m like, “You really don’t need to. I’m fine.” But she insists and says,“One time in the third grade, I shat myself and I had to go home to change my pants.” I’m looking at her and I’m thinking, “I hate to break it to you my friend, but that is not the same.”
The crowd burst into laughter. I kept going. There was this time I was playing cards with my friend Thomas, and it’s hard for me to hold cards. So I’m trying to prop them up on my thigh and they’re all spilling on the ground. And Thomas goes, “Do you not know how to hold cards?” and I was like, “Actually, no I do not.” I explained to him why and he was like, “Oh my god fuck, I’m so sorry. Look,I don’t want this to sound insensitive, but do you know Buster from ‘Arrested Development?’” Then I said, “Um, excuse me? Do I know Buster? The fictional character from a television show who gets his hand eaten off by a seal and wears a hook for a hand in the remaining seasons? Yes, I do. But that is purely coincidence.”
I had built up this moment in my mind for ages and now it was over. The lights went down. There was a chorus of applause, especially from the corner where my friends sat. I felt a sense of relief and a rush of accomplishment.
For so long, the thought of making this aspect of my body so publicly legible seemed like an impossible feat. But now, at the top of the summit, my prior fears and anxieties seemed small and inconsequential. Years ago I had thought that talking about my hand in stand-up would be disastrous. In my elaborate, nightmarish fantasies I imagined my peers would scream in horror, perhaps even gouge their eyes out when I revealed my true self. I shuddered to think that strangers would recoil at my touch. Perhaps I’d walk into the cafeteria to find everyone pointing at me and laughing. However, my delusional brain seemed to be giving me too much credit. In the weeks after the show, my life resumed as normal. Those who did not already know about my difference did not seem to mind or even think twice. The one who cared the most deeply had been me.
And so this set hadn’t been about Mark, even though he had acted as the catalyst. It hadn’t been for or about anyone else but me. I had done this for the version of myself who, as a kid, had blinked three times fast in front of a bathroom mirror and hoped magic would change her. This was for the person who had been so utterly terrified of her body being exposed to the world that she hid, perpetually, under pilled sweaters. I had done this to to prove to myself that I could lean into the things that scared me. I had done this to prove that my own body wasn’t something to fear. For so long I believed that sharing the truth about my disability would reduce me to a synecdoche, that I’d always be the girl with the hand. But after I had brought my whole, unadulterated self into the light I realized others saw me in a way I didn’t always see myself.
And now that I have opened up this box, I see a trove of potential material. Just a couple of weeks ago, I had an experience related to my hand and my immediate thought was “I have to put this in my standup.”
Edited by Kelly Dawson, a disability advocate who was born with cerebral palsy and has a master's degree in media communications.
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You might not be familiar with the name Harper Watters, but you've probably seen one of his viral videos. Maybe the one where the professional ballet dancer struts, pops, and does splits on the treadmill to the sounds of “Fergalicious” — all while wearing a pair of sky-high pink heels? Two years ago, that exact Instagram video became an internet sensation, garnering over 1.4 million views and tons of reposts.
Watters has gone on to post more treadmill routines, in addition to clips in which he pirouettes sans exercise equipment. The star soloist at the Houston Ballet has built an online reputation centered on self-expression and fearlessness. That's what landed him a gig as the face for MAC's Love Me Lipstick collection.
Along with five other individuals who MAC has deemed “powerfully expressive” — a list that includes Halima Aden and Roma Sawayama — Watters appears in the lipstick campaign wearing a shade of candy apple-red lipstick, called Shamelessly Vain. He also takes a stroll on a treadmill to none other than “Lovefool” by The Cardigans.
Watters admits that he came about his signature move spontaneously. It all began when he and his friends randomly put on heels after a workout in the gym. “We were like, 'Could you imagine if we put on these heels and just got on a treadmill,'” he tells Refinery29. They did exactly that, creating the first of many videos. Watters makes it seem easy to pose on a moving stage, but he admits it's a tough task. “It's a lot of prayer, good health insurance, and music that really helps to do it,” he says with a chuckle, revealing that there definitely has been some falling. “The power of editing gives me a lot of grace.”
Although dancing in heels can be tricky — you should probably leave it to the professionals — Watters finds power in wearing stilettos on and off the treadmill. “When I wear the heels, a lot of people see the shoe but there's a certain swagger, a certain attitude that you have to have when you put on heels. The same comes when you put on red lip or you use a gorgeous highlight,” he says. “I really feel like Naomi Campbell when I wear makeup. When you know that you have a stunning lip on, it's indescribable but you just carry yourself a little different. It's like a superhero cape.”
Watters first learned to put on makeup for his dance recitals and studio performances. Over time, he perfected his stage makeup skills by watching YouTube tutorials and copying the techniques of drag queens. “RuPaul's Drag Race was really inspirational for me to start accepting my feminine side and exploring my identity, other sides of who I am, and who I can be,” he says. “It really made me feel like, 'It's cool to put on a heel, makeup, or any type of outfit.”
Don't be mistaken by Watters' undeniable confidence, his journey to self-love has been a work in progress — especially with the pressures within the dance community. “I'm actually in my tenth season with the Houston Ballet, and it's my job to stare at myself in the mirror every day and perfect things,” he reflects. “I doubted myself a lot, and I thought I had to be like other successful dancers. I compared myself to them.”
Eventually, he harnessed the confidence we all see today on his Instagram feed and in the MAC campaign. “It was when I truly accepted who I was, what I had to offer, and what I had to say that my dancing became better.” Watters feeds that self-love by taking his ballet classes every day — which he finds meditative — wearing heels whenever he pleases, and making time for guilty pleasures, like the Real Housewives.
He urges everyone to find the thing that gives them power. In his words, “Whether it's makeup, heels, or doing what you really truly love, celebrate that and own it because once you do that, the sky's the limit for what you can achieve.”
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Ah, pilates. It’s not just for women from the ‘80s wearing neon spandex. It’s a versatile workout that’s good for posture, conditioning, and strengthening. It’s low impact, and ignites your muscles in a gentle way, making it pretty accessible for most bodies. Pilates tends to work the core, first and foremost, but you can target your bum and other areas, too. It can be done with or without equipment, so don’t worry if you don’t have a reformer in your living room!
We worked with Amy Jordan, the creator and CEO of WundaBar Pilates, to come up with some peak pilates moves for you to incorporate into your life for this month's 30-day challenge. Getting them done will only take about 10 minutes, so don’t worry about this taking over your life.
Jordan calls the moves “fun, challenging, core-shredding, full-body exercises – created for you to feel stronger, longer, and 100% empowered!”
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Picture this: The year is 2016; the boy band One Direction officially broke up months ago; and former member and standout singer Harry Styles has made plans to go solo, cutting his shoulder-grazing heartthrob hair in the process. Why? Well, he just ditched the group that skyrocketed him to fame, and he's going to be in a period action-drama about WWII called Dunkirk. In other words, he's moving on. Fans are, naturally, heartbroken over his sudden transformation.
Fast-forward three years, Styles is about to drop his second album (which, he says, is very sad) and just made yet another dramatic haircut decision that is sending fans into a frenzy.
The drama started on Saturday morning when a fan tweeted a selfie of her father and Styles together in Italy. “Soooo my dad just met harry in Italy…., cannot fucking believe my eyes,” she wrote. Soon enough, the photo was retweeted all over the Twitterverse, with fans noticing that Styles looked… different.
As seen in the photo, Styles' not only cut his hair shorter, but he is now brushing it forward into a look that some are comparing to Timothée Chalamet's bowl cut in The King. This is particularly unusual because Styles' hair is always slicked back. Now, he looks like a healthy mix of Stranger Things' Jonathan Byers and former 1D bandmate Louis Tomlinson.
We may not know why Styles got the haircut, when it happened, or if it's for a role, but we do know exactly how some fans feel about it: not good.
me forcing myself to like Harry’s new hair style bc I want to support him in any way possible pic.twitter.com/3JEcNCZNSp
people unstanning harry because of his style and hair 1. what 2. he looks perfect 3. yall only care about looks 4. this beautiful legend stays unbothered
Despite how you feel about the new look, a new era of Styles is officially upon us — and as far as we can tell, Styles is unbothered by the reactions. As one fan tweeted, “He really is THAT bitch.”
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Here on the Shopping team, we’ve been using eBay to source secondhand and vintage clothing since the early years of online shopping. There’s very little that can’t be had on the massive marketplace, and we’ve indulged many throwback whims with the help of eBay’s super-granular search tools — just ask our EIC Christene Barberich how she hacks the site with cleverly specific search terms. However, a lot has changed since our days of vintage-hunting infancy: eBay is now in the business of selling absolutely everything, and secondhand merchandise is only a small fraction of offerings that include Apple products, premium household appliances, and brand-new designer finds.
Despite its foray into omni-retail-dom, we still use the site anytime we have an itch for vintage sterling silver jewelry, a pair of perfectly broken-in Levi’s, or a Batsheva-style prairie dress of the OG variety. And while we’re often hot on the trail of specific search terms, it’s always helpful to have a rolodex of the eagle-eyed secondhand pickers that truly have the goods. So, in an effort to streamline your browse, we’ve rounded up those bookmark-worthy shops reliable for their on-point assortments. Click through to find the vintage purveyors that have us hitting the “save seller” button.
At Refinery29, we’re here to help you navigate this overwhelming world of stuff. All of our market picks are independently selected and curated by the editorial team. All product details reflect the price and availability at the time of publication. If you buy something we link to on our site, Refinery29 may earn commission.
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Like many things, I’d been warned about it by older friends but I didn’t truly understand until I experienced it myself. I’m talking about the year you’re absolutely inundated with wedding, hen party and engagement announcements and invitations. You fork out extortionate amounts of money in train station Accessorizes, on poky Premier Inn suites for one and Beyoncé dance classes you’d otherwise have no interest in partaking in. Your phone constantly vibrates with passive-aggressive messages from strangers on hen do WhatsApp group chats and it seems no one – absolutely no one – can talk about anything other than seating arrangements, first dance songs or the pros and cons of purchasing penis straws in bulk.
'The year' for me was the year I was 29. I was living in London and finishing a master's part-time while working for a national newspaper in the evenings and on weekends. My single dad had recently been diagnosed with a degenerative disease that would almost certainly kill him and I lived in the flatshare from hell. Normally, I’d make a disclaimer here that I was happy for all my friends getting engaged and married and that I wasn’t bitter at all. But that’s not entirely true. I felt left out, left behind, neglected, jealous and sad. I spent the year celebrating my friends' romantic accomplishments, feeling like nothing I achieved mattered at all. When I got my master's degree, against the odds, I got some social media likes and 'well done!' messages, but no celebration. And when I tried to organize a big 30th birthday party for myself, some of the same people whose hen dos and weddings I’d spent time and money attending begged off with excuses, while those who did attend insisted on bringing their husbands.
'The year' passed of course, the flurry of invites and announcements slowed down and things in my life gradually got better and less other-people's-relationships-centric. I started postgraduate research at a good university in a provincial city and there I formed a tight-knit group of friends all doing their PhDs. For the first time in a long time I found external, and internal, validation from something that didn’t involve men.
So recently, as one of my PhD friends, Jenny, was about to submit her thesis I decided to enlist a group of us to plan and throw her a 'doctoral shower'. She is around the age I was when I had 'the year' and I know plenty of her friends outside academia are busy planning hen dos and weddings. But she deserves a bit of love and recognition, too. We’ve booked an Airbnb in Brighton that we can decorate with naff doctor-themed paraphernalia, where we plan to take her after her viva (the nerve-wracking part of a PhD where you have to defend your thesis in front of experts) for games, quizzes and a lot of well-deserved good food and wine.
While I wish I could take credit for the idea, the concept first came to my attention through an American woman I follow on social media, Anne Christianson. Anne is a PhD candidate at the University of Minnesota evaluating international climate change policies. Her friends threw her a doctoral shower earlier this year and when I saw the joyous photo evidence of it on her Facebook, I decided to find out more.
She tells me it was an amazing day. “We had trivia, made academic gowns (rather than bridal gowns) from toilet paper, and then had a white elephant book exchange with environment or climate-themed books. People gave toasts to me, which honestly moved me to tears.”
Talking about the idea behind the shower, she said: “I realized I was increasingly frustrated that society doesn't value women who set off on a more independent pathway. The ritual of having a gathering to mark and honour the hard, oftentimes harder, work we have done to reach these milestones isn't formally recognized by our friends and family.”
But despite the strong sentiment, she said the shower didn’t cause a rift with her married friends. “Many of my friends who have got married and had kids pointed out the need for mutual recognition and inclusiveness of celebrating women's life accomplishments, whatever they are.”
Unlike the endless wedding industrial complex sponsored events we keep importing from across the pond (rehearsal dinners, engagement showers, gender reveal parties, etc) this is one Americanism we should be incorporating into our lives more. As Anne put it: “The shower gave me the opportunity to unapologetically say 'I’ve worked hard and I deserve to be celebrated'. Something women often have a hard time saying.”
Life isn’t fair, I know. Some people get beautiful weddings. Some people get PhDs. Some people get both, while some will get neither. Similarly, people’s idea of what success and happiness looks like varies greatly and we’d all do well to remember that someone taking a different life path is not a condemnation of the one you chose.
But in 2019 is there not room for celebrating a wider variety of women’s accomplishments outside of marriage and procreation? Next time you’re going all out planning a friend’s hen do, maybe consider putting a similar amount of effort into throwing another friend a party to celebrate that promotion, that new flat, that brave decision to leave a dead-end job.
No matter how big or small the achievement, we all deserve celebrating from time to time.
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Sure, luminizers are great, but in 2019, bronzers have become the unsung heroes of glowing skin. Ages ago, people used them to fake a tan during the colder months, or added creamy formulas underneath foundation, but for some reason, people with darker skin weren't included in that narrative.
"One of the biggest myths of the beauty industry is that people of color already have naturally bronzed skin, so they have no use for bronzer," makeup artist Kilprity Moore tells us. "But if you look hard enough, there are amazing bronzers for everyone."
Highlighting powders can sometimes look too milled or too shiny on medium, dark, and deep complexions. But with bronzers, the formulas are typically warmer, meaning you can dust it on liberally for a glowing effect. So, maybe you don't necessarily need to fake a tan if you're already blessed with melanin — but everyone can score a good glow up. Ahead, get the details on the best bronzers for medium, deep, and dark skin tones.
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The world could learn a thing or two from the Latinx community, a culture that prides itself on feel-good music, delicious food, and badass leaders (hello, Alexandria Ocasio-Cortez).
One thing we hold especially high is our love for beauty. From a young age, our mothers and grandmothers teach us the tricks they learned from their mothers and grandmothers to help us maintain healthy hair, nails, and skin. It's no wonder we see so much Latinx talent shining in Hollywood while catering to some of the biggest stars in the biz, like Rokael Lizama, the makeup artist behind Beyoncé's instantly-iconic OTR II looks. (Let's not forget that we're also a spending power in beauty retailing, as reported by Nielsen.)
So, in honor of Hispanic Heritage Month, we thought it'd only be right to spill our secrets — well, some of them. That's why we asked several Latinas to share their go-to beauty hacks, and rounded up some of our favorites. From fighting sweat to growing nails, these useful tricks won't only save you money, but might just inspire you to change up your beauty regimen, too. Ahead, the best beauty hacks nine Latinas learned from their familias.
Today, there are roughly 55 million Latinxs living in the U.S. — each one of us with unique cultural experiences. In our new series #SomosLatinx, R29's Latinx staffers explore the parallels and contrasts that make our community so rich. Stay tuned as we celebrate our diversity during Latinx Heritage Month from September 15-October 15.
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The hotel chain will begin offering larger, pump-topped bottles of the toiletries at around 1,000 of its North American properties. As of the announcement, Marriott expects for the change to be rolled out at most of the properties by December 2020.
This decision to eliminate single-use bottles comes a little over a year after Marriott International announced it would remove plastic straws worldwide by July 2019. It's also part of a larger trend of big companies from Walt Disney World to Starbucks rolling out sustainability initiatives.
According to a press release issued by Marriott yesterday, when the use of large, pump-topped toiletry bottles are introduced at Marriott properties across the globe, 500 million small bottles annually are expected to be prevented from going to landfills, which comes to about 1.7 million pounds of plastic. So far, around 1,400 Marriott properties offer larger-pump-topped bottles. But, as it's got over 7,000 properties total around the globe, the chain still has some changes to make.
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You remember this handbag: it sat in the car between the driver and passenger seat, always by your mom’s side as she chauffeured you to school on her way to work, or made the pilgrimage to the pizzeria after soccer practice with you and your three best friends in the backseat. It wasn’t huge, but it was big enough to hold a wealth of necessities for everyone in your family, and it was equipped with seemingly endless pockets and dividers to keep everything organized. Tissues, bandages, peanut butter crackers, a bottle of water, extra socks, Chapstick, sunglasses, disinfectant, Mad Libs — the solution to every problem was contained in that (roughly) 11" x 14" vessel. Your mom set the bar high for this item: it had to be easy to clean, in a color that complemented everything in her wardrobe, with a strap long enough to sling over her shoulder with ease. It also had to have a secure closure to keep all of her precious essentials safely in place.
Now, years later, your mom is still rocking that multi-purpose purse, and you’re starting to understand why. A medium-sized shopper replete with compartments for all of the things you lug — laptop, phone charger, change of shoes, dry shampoo, hot sauce — and a construction sturdy enough to withstand being shoved under things — desks, airplane seats, cubicles, and barstools — is the holy grail of handbags, and you find yourself eyeing your mom’s carryall and wondering where you can score one for yourself. So if you’re looking to cop your own “mom bag” this spring — or if you’re planning on helping your mom upgrade hers in the next few months — look no further, because we’ve rounded up the ones that are totes the best.
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Sunday Riley stans may swear by Good Genes, the brand's top-selling potion that delivers brighter skin thanks to powerful AHAs, or the retinol-infused Luna Sleeping Night Oil, which helps minimize fine lines and uneven texture overnight — but there's a new holy-grail coming to shelves this month. Meet Ice Ceramide Moisturizing Cream, the cult skin-care brand's take on a nourishing ceramide cream.
Quick science lesson: Ceramides are naturally present lipids that bolster the skin barrier. The fatty acids in ceramides are especially key if you have dry skin, since they help lock in moisture so your skin stays hydrated round-the-clock. With ceramides as the key ingredient, this moisturizer will be especially useful in the colder, windier temps that will be descending this fall.
“I created Ice Ceramide Moisturizing Cream because, as a person with dry skin, I wanted something rich and soothing as we go into the colder months, something that instantly absorbed into my skin for ultimate softness and glow,” Sunday Riley, the founder of the brand, tells Refinery29.
The texture is as decadent as it sounds, falling somewhere in between whipped cream and cake frosting. It may be a little heavy for oily skin, but dry or combo skin types will drink it up. Or, you can reserve this thick moisturizer for in-flight use, when the dry air is known to dehydrate skin.
In addition to ceramides, this moisturizer is packed with other hydrating ingredients — like red algae extract, squalane, and coconut extract (which lends a subtly sweet scent) — to help soften and plump skin. At $65, it's not exactly the same as stopping by the drugstore for a tub of CeraVe, but rest assured that it's a truly formidable opponent against dry skin.
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Combien de fois vous êtes-vous réveillée avec un mal de tête en faisant cette promesse solennelle : plus jamais ça ! Pour beaucoup d’entre nous, le sentiment de gueule de bois, les bleus dont on ne sait comment ils sont arrivés là et les nausées qui vous font regretter votre existence, vont de pair avec une consommation d’alcool abusive. Mais certains des effets de l'alcool les plus graves sur la santé sont beaucoup moins bien connus ni même discutés, en particulier en ce qui concerne les femmes.
C'est peut-être parce que les statistiques sur la consommation d'alcool montrent que les hommes sont plus susceptibles de consommer de l'alcool que les femmes, et que les personnes âgées de 45 à 64 ans sont les plus susceptibles de boire. Dans le même temps, l'abstinence a augmenté chez les 16-44 ans depuis 2005, et les 16-24 ans sont le groupe le moins susceptible de consommer de l'alcool.
Cependant, malgré ce qu’on entend dire à propos de la consommation d'alcool de la génération Y qui serait moins fréquente que celle de nos parents, lorsqu’on boit, on a tendance à le faire avec démesure.
« Tout le monde sait que les maladies du foie sont liées à l'alcool, mais ce qui est moins bien connu, c'est qu'elles touchent de plus en plus de jeunes et qu'elles commencent à toucher les femmes dans une mesure beaucoup plus importante que dans le passé, » explique la professeure Petra Meier, directrice du Sheffield Alcohol Research Group. « Les hôpitaux nous disent maintenant qu'ils voient de plus en plus de jeunes gens et de femmes dans la trentaine qui ont trop bu pendant un certain temps et qui ont vraiment endommagé leur foie.
Une étude publiée récemment indique que nos habitudes de consommation d'alcool à l'échelle nationale ont de graves répercussions sur le Service de santé. Une étude a révélé que 10 % des admissions aux urgences sont liés à l'alcool, et 10 % des Français consomment de l'alcool tous les jours.
« L'alcool peut affecter tous les systèmes de l'organisme, du cœur au foie en passant par le système nerveux, et il peut aussi avoir des effets importants sur la santé mentale, » explique le Dr Emmert Roberts, psychiatre spécialiste des dépendances.
« Lorsqu'une consommation d'alcool est telle qu'elle vous mène à l'hôpital, on peut dire qu'elle est excessive et cela affecte votre santé mentale et physique. Cela peut se traduire par une jambe cassée, ou une cirrhose du foie, » ajoute-t-il.
Nous avons discuté avec trois femmes dans la vingtaine et trentaine dont la consommation sociale d'alcool s'est transformée en une dépendance à l'alcool plus grave, causant des dommages importants à leurs organes internes, leur système nerveux et même leurs os.
« Mon foie me faisait tellement mal que je n’arrivais plus à m’asseoir »
Sonia, une professionnelle des relations publiques de 37 ans, avait 24 ans lorsque sa spirale alcoolique s’est déclenchée suite à la rupture d'une relation à long terme. « J'avais tout planifié : me trouver un bon travail, m'installer, me marier, peut-être avoir des enfants. Quand nous nous sommes séparés, c'est tout mon monde qui s'est effondré, » dit-elle.
« Au début, je me suis dit que j'allais sortir et essayer d'oublier tout ça, en espérant que je me sentirais mieux un jour. Malheureusement, cela a eu l'effet inverse : j'ai continué à boire et je ne me suis pas sentie mieux du tout, » ajoute-t-elle.
« Pendant cinq ou six ans, j'ai bu tous les jours, parfois dès sept heures du matin. Rétrospectivement, c'était beaucoup, et j'ai beaucoup de chance d'être en vie. J'étais jeune, je ne réfléchissais pas vraiment aux effets à long terme, et l'alcool a complètement pris le dessus sur ma vie. »
Originaire d'une communauté asiatique, elle ajoute que la honte et la stigmatisation autour de la toxicomanie n'ont fait qu'ajouter aux difficultés de Sonia. « Les anciens de la communauté asiatique ont tendance à porter des jugements, » dit-elle. « Peu de femmes asiatiques osent dire qu'elles ont des problèmes de dépendance. C'est quelque chose dont on ne s'attend pas à ce qu'elles souffrent. »
Lorsqu'elle était au plus mal, Sonia raconte qu'elle ne mangeait plus et perdait du poids rapidement. Sa peau et le blanc de ses yeux sont devenus jaunes, et elle avait le teint pâle et l'air décharnée. Sonia souffrait également d'évanouissements constants, ainsi que de douleurs au foie et au bas du dos, au niveau des reins. « Il y a eu un moment où j'étais au travail, et c'était si douloureux que je n'arrivais pas à m'asseoir sur ma chaise pendant la majeure partie de la journée, » dit-elle.
« Mon médecin m'a fait passer quelques tests et on m'a dit que je devais arrêter de boire ou du moins réduire ma consommation drastiquement. C'était un avertissement : “Si vous continuez comme ça, vous allez probablement finir par avoir une cirrhose.” C'est là que j'ai su que je devais prendre ça plus au sérieux. »
Après plusieurs phases de sobriété et de rechute, Sonia est maintenant capable de boire avec modération. Elle dirige sa propre entreprise de relations publiques dans le domaine du sport. « J'ai l'impression d'avoir repris le contrôle de ma vie, » dit-elle. « Mais je m’estime heureuse. »
« À 21 ans, on m’a annoncé qu’il me restait deux mois à vivre si je n'arrêtais pas de boire. »
Bella*, 24 ans, a commencé à boire socialement à l'âge de 15 ans, mais c’est à 19 ans que les choses ont basculé, après la mort de sa mère. « Ma mère avait elle-même des problèmes avec l'alcool, et elle s'est suicidée. C'est vraiment là que tout a basculé. Lorsque j’étais au plus bas, je pouvais boire jusqu'à deux litres de vodka par jour, explique-t-elle.
« Ma santé a vraiment commencé à se détériorer presque du jour au lendemain. Pendant quelques années, j'ai passé beaucoup de temps à l'hôpital, pour des programmes de désintoxication. C'est à 21 ans que ça a été le pire et que mes jambes ont cessé de fonctionner. C'était tellement douloureux que j'avais l'impression de marcher sur des couteaux. Cela m'a un peu secoué, parce que je ne comprenais pas ce qui se passait. On m'a dit que j'avais une neuropathie périphérique, où les terminaisons nerveuses meurent, » raconte Bella.
« Environ deux mois plus tard, j'étais de nouveau aux soins intensifs, cette fois avec de fortes douleurs à l'estomac et je vomissais du sang, » se souvient-elle. « À ce moment-là, on m'a dit que si je continuais à boire, il me restait tout au plus deux mois à vivre. Ce qui est vraiment triste, c'est qu'à l'époque, ça ne me dérangeait pas vraiment. J'avais tellement mal et je ne voyais pas vraiment comment m’en sortir. »
Le premier anniversaire de son demi-frère a été une véritable prise de conscience. « J'étais à l'hôpital juste après une désintoxication et j'ai appelé ma famille FaceTime pour son anniversaire. C'est alors que j'ai réalisé que je n'étais pas la seule à avoir mal, que mon alcoolisme affectait aussi le reste de la famille. »
Après une désintoxication complète à l'hôpital, Bella a commencé à assister aux réunions des Alcooliques anonymes (AA) tous les jours et elle cela fait presque trois ans qu’elle est sobre. « Je n’ai jamais été aussi proche de ma famille, j'ai mon propre appartement et j'enseigne de nouveau, » dit-elle. « Je me suis enfin construit une vie. Une vie bien à moi. »
Bella est toujours aux prises avec des lésions nerveuses à long terme, ce qui affecte son équilibre et elle souffre également de problèmes digestifs. Mais dans l'ensemble, dit-elle, sa santé s'est considérablement améliorée, et elle est « émerveillée par la façon dont le corps s’auto-guérit. »
« Quand j'étais à l'hôpital, on m'a dit que j'avais une maladie hépatique aiguë et on m'a montré des scintigraphies où mon foie était devenu plus gros et marqué. Chez une personne de 20 à 30 ans de plus, le foie ne se régénère généralement pas. Heureusement, en raison de mon âge, le mien a réussi à se rétrécir et a commencé à guérir, » dit-elle.
« J'ai eu une double prothèse de hanche à 30 ans »
Geri, 32 ans, a commencé à boire du vin à l'âge de 15 ans. « Au milieu de la vingtaine, les choses se sont accélérées et à l'âge de 29 ans, je gardais toujours un verre de vin à côté de mon lit car mes jambes tremblaient déjà trop pour pouvoir m'extirper du lit, » explique Geri.
« J'ai été hospitalisée à plusieurs reprises, mais lorsque j'ai touché le fond, mes jambes et mon ventre se sont mis à gonfler, et j'avais de la difficulté à marcher parce qà cause de la douleur, » se souvient-elle. « J'ai été transporté d'urgence à l'hôpital et mon père, qui avait été généraliste pendant 40 ans, m'a dit qu'il n'avait jamais vu un patient dont le taux de sodium était aussi bas que le mien. Malheureusement, parce qu'ils ont dû rétablir mon taux de sodium le plus rapidement possible, cela m'a causé des lésions cérébrales — ce qu'on appelle la myélinolyse du pont central, » ajoute-t-elle.
« Je ne pouvais pas marcher, je ne pouvais pas parler correctement, ma coordination se détériorait complètement et il m'arrivait parfois de perdre le contrôle de ma vessie ou de mes intestins, » raconte Geri. « Je pensais que j'avais déjà touché le fond plusieurs fois, mais c'était environ 10 niveaux en dessous. Toute ma dignité a disparu.»
Geri n'a pas bu depuis cette hospitalisation, et elle était sobre à son 30e anniversaire, mais elle a eu une pancréatite chronique ainsi qu'une cirrhose du foie, qui a été diagnostiquée lorsqu'elle était sobre depuis six mois. « En gros, plus rien ne fonctionne correctement, » dit-elle.
Bien qu'elle soit sobre depuis près de trois ans, les séquelles de de sa consommation d'alcool ont pour conséquence des visites régulières à l'hôpital, tant pour des examens de routine que pour de nouvelles complications. « Peu de temps après qu'on m'a diagnostiqué une cirrhose, j'ai commencé à avoir mal aux hanches et j'ai reçu un diagnostic de nécrose avasculaire. En gros, mes hanches me lâchaient, alors j'ai dû subir une double arthroplastie de la hanche. Maintenant, tous mes os sont examinés régulièrement et je suis à la limite de l'ostéoporose, » dit Geri.
*Le nom a été changé pour protéger l'identité de Bella.
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